The Advocacy Council was established (i) to link the Rays of Hope Community with breast cancer researchers to accelerate and focus research ideas that are the highest priorities; (ii) provide communication between the Rays of Hope Community and researchers; (iii) promote research advocacy by reviewing, providing perspective and influencing research proposals.
Mission: To promote research advocacy by reviewing, providing perspective and influencing research proposals and
To link the ROH Community with the ROH CBCR investigators to accelerate and focus research ideas
Responsibilities:
Review research ideas to assure relevance
Review patient materials to assure clarity
Assist in devising strategies to encourage research participation in our community
Consider serving as an Advocate/Community Engagement Advisor on a research grant
Members:
Elizabeth Cahn, Patient Advocate, Review Board Representative
Nancy Cokotis, Patient Advocate, Review Board Representative
Agnes Fleming, Patient Advocate
Lucy Giuggio Carvalho, Patient Advocate
Beverly Herbert, Patient Advocate
Susan E. Mahoney, Patient Advocate
Anna Symington, Patient Advocate
Kristine Vinci, Patient Advocate
Jane Vogel, Patient Advocate
Ex officio Members:
Grace Makari-Judson, M.D., Co-Director Rays of Hope Center for Breast Cancer Research, Medical Director of the Breast Center,
Baystate Medical Center
Joseph Jerry, Ph.D., Co-Director Rays of Hope Center for Breast Cancer Research, Science Director of the Pioneer Valley Life Sciences Institute, Professor, UMass Amherst
Emeritus Members:
Deborah Bloom
Mary Gail Cokkinias
Robin Fowlkes
Gayle Kirkwood
Jill Schroeder